CHARITY GIG AT THE SAVOY THEATRE IN AID OF BEE FOR BATTENS, THE SAOIRSE FOUNDATION
TO SUPPORT A LOCAL DAD SAVE HIS KIDS LIVES
MICK FLANNERY, JOHN SPILLANE & FRIENDS
HEADLINE THIS AMAZING GIG AT THE SAVOY THEATRE CORK
THURSDAY MAY 20TH - DOORS OPEN AT 7.30PM
RAFFLE AND AUCTION ON THE NIGHT WITH FANTASTIC PRIZES!
TONY & MARY HEFFERNAN APPEARED ON THE LATE LATE SHOW WITH RYAN TUBRIDY, ON FRIDAY 19TH MARCH 2010. THIS WAS THE STARTING POINT OF THEIR FUNDRAISING CAMPAIGN TO SAVE THE LIVES OF THEIR CHILDREN, SAOIRSE & LIAM, WHO ARE TERMINALLY ILL DUE TO BATTENS DISEASE.
THEIR ONLY HOPE NOW IS TO GET BOTH CHILDREN TO THE STATES FOR MEDICAL TRIALS LATER THIS YEAR. TIME IS PRECIOUS, THEY DESPERATELY NEED YOUR HELP.
TICKETS: €20 EACH AVAILABLE FROM www.tickets.ie & PRIMETIME, WASHINGTON STREET, CORK
Bee for Battens is the Irish campaign for raising awareness & supporting those affected by Battens Disease, a genetic condition of the nervous system that leads to children becoming totally disabled. Battens disease is not preventable and to date has always been fatal. This is why we need to raise money now so that these children can take part in the trails based at Weill Medical College of Cornell University in America, this is their only hope for survival. Bee For Battens is operated by The Saoirse Foundation, a Non-Profit Volunteer Based Charitable Organisation for Battens Disease.
The Saoirse Foundation was formed to provide parents, families and all those affected by Battens Disease in Ireland with a home based support and networking organisation, and as importantly, a credible source of information. The founding families are Tony & Mary Heffernan, whose 2 children have Battens, and Alan & Shauna Bates whose daughter Rhiannon was diagnosed with the disease. Our Support & Research activities completely rely on fund-raising and donations from the public and private business sectors. By raising awareness & working together we can all do our bit to help those affected by this rare neuro-degenerative & to date, fatal condition, affecting babies, young children & juveniles on the Island of Ireland. We want to change that, and we need your help. Presently our top priority is to fund the children to go on the medical trials in the United States and to give hope to those affected families. Medical trials however have enormous costs so please lend your support in whatever way you can. It all helps and contributes towards a brighter future for those affected by Battens. Your contribution could help save their lives!
If you have any questions about the charity or the disease itself please contact support@beeforbattens.org or visit the website www.beeforbattens.org and you can also follow our progress and keep up with events via Facebook and Twitter.
Thank you for your support
Bee for Battens team
On behalf of Saoirse, Liam & Rhiannon
Bee for Battens, The Saoirse Foundation is a registered charity in Ireland
buzz@beeforbattens.org www.beeforbattens.org CHARITY NO: CHY 19226
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